One of the most well-known fatigue scales, the Chalder Fatigue Scale was created for chronic fatigue syndrome patients. Do you ever experience sciatica (pain that travels along the path of the sciatic nerve meaning the lower back, buttocks, hips, and legs)? So if I wake up after an episode of this and I CAN pick up my feet it feels so wonderful.
My frustration is everyone assuming Ill be to tired and no longer ask or include me in anything, I used to be the fix anything dependable guy, my shop was a constant flow of coworkers vehicles, now I might not even open the shop door for weeks, put things off until I have a good day no longer works, I find slowing things down, taking sitting breaks even if I feel ok really helps, come up with a solid plan on how I am going to do something helps, even errands, getting outside (when its not hot) getting lots of fresh air vs sitting around inside the house, I wish I had a magic idea for you, maybe one day MS will be no more.. Take care
,This describes MS fatigue very well. Every move and every thought takes effort and the little bit of strength that I have left.
Thinking of you. Let alone, attend my sons baseball game and be social.
Physically, it feels like I'm being weighed down by the vicious pulling of the sand. When fatigue hits with summer weather Im in an altered state. You are not alone! Calie
I honestly do not understand why so many people feel the need to EXPLAIN fatigue and pain and all else that comes with this disease. The first type is a general feeling of tiredness. Another theory is that fatigue is related to reduced electrical transmission of signals in the brain. Depending on what's causing your MS fatigue, a doctor may prescribe: anti-inflammatory pain medications, like aspirin. I need the latter to have more quality of life. This, he says, may be a result of a lack of appetiteanother symptom that can help you distinguish if your fatigue is being caused by COVID. Rain or shine. XOXO, Calie
,Calie, you are in good company, though it often doesn't feel that way. From a friend who trys to stay out of quicksand and speaks and knows the lingo.
,
Check it out! There could be a biological correlation in people with MS, Dr. Miravalle says. Long story short. Not every day is like that, but after an emotionally stressful last few weeks, Im feeling the weight of my fatigue in full force. It is always good to hear that there are others that do understand and are in it with us. Or having a cold and feeling a little bit rundown. The following are characteristics of lassitude that help to distinguish it from "normal fatigue . Just to have some type of freedom from "reporting" the whole time.
Calie, you are definitely not going through this alone!
What Does MS Fatigue REALLY Feel LIke? Don't get me wrong, we enjoy her company but yesterday I gave my husband that look.
I had to stop working, have cogitive issues, bladder/bowel incontinent issues and struggle to walk very far.
I do feel the fatigue is eating me alive, and I wish I too knew how to beat.
I have MS too, and I totally understand your struggle!! As tired as when you went to bed after waking up from a full night's sleep. But your explanation does a very good job. We do not endorse non-Cleveland Clinic products or services. Pacing yourself and taking breaks during the day can help you stay healthy, says Wentink.
I have been diagnosed with MS for 16 years and I still do not know how I beat it sometimes and others times it devours me whole.
Great description!
Thank goodness for AC. It may feel as if one has not slept the night before.
I'm sure many can relate to your sentiments and please know we're here for you and there's always a listening and supportive ear for you here.
Even then theres a possibility that the damn illness could decide to rear up and bite me. That's what this community is all about. Of course no one understands what it's like unless you have MS yourself. Calie
Calie, you are not doing this alone! Its an on going vicious circle.
,After reading this I was relieved and kinda excited.
Now, when I try to go to the mall, I get so exhausted, I start dragging my feet, and then I just want to go home. There are lots of medications that can be used to treat heart failure. Medically reviewed by Nancy Hammond, M.D. If stress remains heightened for a long time, there will be more cortisol and less dopamine and serotonine, the lack of which have been linked with depression.
and the fatigue, etc. So happy to have made it home before it got dark, (5:00 p.m.) and yes! MS fatigue can negatively affect a persons quality of life. It usually happens in the face, arms, or legs, and on one side of the body. Such a balancing act and different for everyone! "These are people whose muscles may not be tired, but who still crash at 2 p.m.". Its so nice to know they care, and we love them for it, but sometimes its frustrating knowing they cant quite understand. Wishing you the best, Calie
Thank you. I hear what you're saying and get it!
MRIs can reveal a number of important findings in arthritis, including synovial membrane or tendon problems. Best Wishes, Calie
Callie, After reading your article I finally felt that someone else understands how I feel. For years I've been trying to explain the way fatigue feels on me. There is no empathy except for the senior citizen trying to use the overhead bin.
Occupational therapists can suggest modifications to your home or workplace to improve your efficiency and reduce the effort involved in daily tasks. The fatigue we endure is so difficultand I agree, its comforting knowing we arent alone! Fatigue has been described as an "overwhelming sense of tiredness." Up to 80 percent of people with MS experience the disabling effects of fatigue.
Psoriatic arthritis causes joint pain, swelling, and stiffness. People with MS often take several medications. I think that may be the case for me. These two types of fatigue are probably separate problems related to the MS. Three neurologists have agreed with me on this as well. I do love those times when I wake up feeling half normal!!! If I am feeling good and like I can do something I spontaneously reach out but its usually "sorry, need more notice" and spontaneity is misinterpreted as flighty more often than not. Im done
MS fatigue is more than the tiredness that everybody feels after exertion or missing a good night's sleep.
Will they ever truly understand? Not understanding what your body is doing is extremely difficult, especially when youre waiting on a definitive diagnosis. We all experience tiredness at times, which can be relieved by sleep and rest. I have had to tell my brother i simply cant talk to you anymore as i am struggling to catch a breath. You might worry that because you feel so tired all the time your cancer could be getting worse. I always feel like they don't believe me and always tell me what I'm doing wrong.
Multiple sclerosis (MS) is a condition that damages the nerves and causes a wide range of symptoms. I often feel the same way when someone says "me too". When you throw in the imbalance it's not a good feeling. Thinking of you, Shelby, Team Member
Yes I know exactly what you mean, and add the "But you look so well" and then you think."What's the point of leaving the house" and you don't.
,Ugh the MS fatigueIts debilitating to say the least! This is my largest issue following cognitive impairment, and I completely relate to the exertion of thought, stress, physical activity, etc. Multiple sclerosis - causes, symptoms, diagnosis, treatment, pathology. Limbs are heavy and there is a weight that is impossible to shift, even when doing the most menial of activities. From Aha!
After an all day marathon yesterday of going here and there trying to prepare for a winter storm/blizzard warning starting tonight, I was barely functioning by mid afternoon. - Jada (MultipleSclerosis.net team member)
I pray and plan to do a principle from the Wright brothers." take on the worst thing first." Priorities and difficulties determine my day. At this point i am not scred for that to be the case and just relieved to know whats the issue! Your brain is slow. Its the leading cause of loss of work among people impacted by MS. Its important to accept that it may be part of life with MS but that working with a medical team and enacting lifestyle changes to address fatigue can help. I just go to sleep wherever I feel safe these days, and then they know I did all I could. I stopped getting upset over these temporary setbacks and learned to go with the MS flowMost of the time. The best description Ive read about fatigue says, that being tired and exhausted can be overcome, fatigue is there to stay. Please reach out anytime! I almost always just feel like I don't have the energy to do whatever my wife does (she also has MS). Chronic fatigue is life-altering and needs specific attention. MS tingling is a type of nerve pain.
My neurologist prescribed Nuvigel which works wonders for me, not saying everyone should take it, ask your neurologist!!
Now i struggle to eat, drink, breath and pee.
Thank you so much for reading and commenting! Its great to hear Im not the only one.
remember as a kid trying to get through really deep snow, how hard that was? What you do in response to those thoughts and feelings can also make a difference. My husband had a hard time understanding why I always said "the TV is too loud", "I don't think I want to go to the concert" and many other activities that I was trying to protect myself from. It's different than lack of sleep or physical exertion. It is common for people to report bands of tingling. In this article, we discuss the symptoms, causes, and treatment of MS fatigue. If you are taking medications that are causing fatigue, discuss these with your doctor; together, you and your doctor may consider reducing or eliminating these drugs. Ive had MS for 25+ yrs and fatigue has always been extreme. Feel fatigued may be due to missing vitamins and minerals in your diet, such as being low on vitamin D, iron, magnesium, potassium, vitamin B12 or folic acid. I hope you recover quickly from both the broken hip and the resulting flare.
I was sleeping and exhausted all the time and like you it was my worst symptom. Someone ends up wandering through the desert or the jungle, and they come upon this sneaky sand that easily blends into their surroundings. Thank you so much for sharing your post. Even though fatigue happens in most people with MS, its possible other things could be dragging you down. Fatigue can be very frustrating. What does Symptoms of MS feel like Nikki? I know the importance of exercise, I just find that going to the grocery store and maybe cooking dinner for my starving family is all I can take. He is in his 70s, long retired and does all the grocery shopping. I was diagnosed with MS 36 years ago and having this disease all of these years has allowed me to see more of how phony people really are. Because fatigue is invisible, sometimes it is not properly understood. My Neurologist is hesitate to say.. or isn't sure, so I have no clear answer. Fatigue is so bad you cant bother to cook or eat. Sure, it could be worse, things can always be worse, but it should be better. I guess that is part of the fatigue mode.
Calie, it sucks, doesn't it?!
!
"Lhermitte's sign," a common MS-related pain, can feel like an electric shock to the neck "Symptoms may include frequent urination, trouble starting or maintaining a urine stream, an inability to empty the bladder or incontinence," notes Dr. Scherz. . "We deal with pain all over the body and fatigue so bad it feels like you're in quick-drying cement." Thomas Macdonald 4. I too have described it as walking through wet sand. Its not a matter of lack of sleep, laziness or anything of that sort. I pulled over and realized that I was tired, went home to lie down and I was fine.
It is almost impossible to explain to others about fatigue. For example, I may tell .
1: rarely 2: sometimes 3: often 4: almost always insomnia headaches dry mouth dizziness blurred vision disrupted sleep due to muscle spasms or bladder poblems depression stress low energy levels. I agree with iluvdogs, what is the point of wasting energy to try and explain to people unless they have it they will never understand. Cancer fatigue doesnt usually go away with sleep or rest. What I wouldn't give to be their kind of tired!! We have to be conscious of what we say.
If support from family and friends and positive lifestyle changes arent enough, it may be time to seek help from a mental health professional. I despise this theft of my life also. Malls remind me that my old self is gone. Often, unexplained tiredness that doesnt appear to have a cause can be a result of high blood pressure. Read Also: Nosebleeds Dizziness Headaches Extreme Fatigue. I only ever have half a day available; if I can stay in bed in the morning and rest then theres more chance of me being able to do stuff later in the day, usually after 2pm. At least 50 percent of individuals with MS report significant symptoms associated with depression. Your feelings are valid in every single way. Nothing ticks me off like saying I'm tired and having someone say "me too". Regional MS Community Support Staff, friends, family members and other people with MS can be useful sources of practical advice on ways to reduce energy needs. To me fatigue is like being encased in concrete boots and trying to walk forward is just a huge effort. Perhaps Ocrevus is not a good match as a treatment.
When talking about fatigue, mine isn't the sleepy kind. Examples include: Alongside taking medication, people may find that developing a good support network and sharing the experience of MS fatigue can help improve their emotional well-being. Learn more. There are a variety of ways to combat fatigue in MS. This is similar to the Mediterranean diet, and the same healthy diet thats recommended for the general population. Due to the fatigue, physical inactivity, and imbalance, the activity level of the person gets reduced leading to loss of muscle mass. I'm doing okay now, some days are really hard, but I have some really amazing friends, family members and husband to help me through. If you are physically out of shape and overweight, everything you do requires more energy. A second type of fatigue is muscular. One way of describing this is that you may feel like you have a virus . Fatigue is my most pervasive MS symptom and basically defines what I think of as my "new normal".
,Thank you Calie, for the well thought out attempt to articulate the reality of your life with MS. You most definitely are not alone in this. You may also feel fatigued as a side effect of a medication youre on, or from drug or alcohol use.
It is usually unpredictable and can worsen or improve for a time. Presently, there are no FDA-approved drugs for treating MS-related fatigue. Get useful, helpful and relevant health + wellness information.
In MS you can experience acute neuropathic pain and chronic neuropathic pain.
What "I" really mean when I say I'm tired..I'm drained, I'm exhausted, I feel like I haven't slept and yet I just slept a solid 8 or 10 hours! Not all of my fellow employees knew about my MS so they would just stare at me lol but life goes on. I am in college, have a part time job, a boyfriend and friends I still want to hang ot with. I have had M.S.
They have saved my life when I have been overcome with heat. Its beyond us. You might not even feel up to a chat. MS fatigue is more than the tiredness that everybody feels after exertion or missing a good nights sleep. My neurologist has prescribed it for me and I have been taking it for 7 months now. "
Hi
In my opinion, it is the worse MS symptoms.
Thank you for putting this into words.
I hope things get better for you as well! It took time but I finally came to the conclusion fatigue will slow me down but it will not stop me.
Heat ugh. They include: In addition, disease-modifying therapies (DMTs) may help reduce MS symptom frequency, delay disease progression, and limit new disease activity. Describing how your fatigue makes you feel x physically, mentally and emotionally may help them better understand the often unavoidable role it plays in your life and how it may find its way into their lives, too. Like when replying to someone asking how we arewe can reply;"I am doing well and very thankful for_______." In this type, there is increased weakness after repeated activity.
The debilitating condition can last for yearsor even a lifetimeand is not curable.
Fatigue can affect the way you feel about yourself and your relationships with other people. If you have MS, chances are really good that you have MS-related fatigue about 80 percent of people with MS do according to the National Multiple Sclerosis Society of America. Cooling someone too quickly such as taking cold baths or sitting close to the air conditioner can cause shivering and vasoconstriction. Quick sand exhausted. When I say Im tired, no offense, but unless you have chronic fatigue, MS, or something along those lines, I dont expect you to fully understand. I really mean it. Limiting the number of medicines is good medical practice. Sometimes Ill stick my head under the faucet running cold water in the laundry room just to alter the strange feeling in my head. HARD. 2. This can be tricky, but once you get into the flow of your routine, conserving your energy can be a smart way to battle your fatigue. Calie
The quicksand analogy is spot on. I found myself in it.https://multiplesclerosis.net/living-with-ms/ms-routines-when-olivia-benson-isnt-on/
Supplements for heart health: Which ones are beneficial and which ones are not? The first type is a general feeling of tiredness. When the heart muscle becomes weak and cannot adequately pump blood into the arteries, blood backs up, and pressure in the blood vessels causes water to leak out of blood vessels into the tissues of the body, which may cause heart failure. Only my head and arms are above it and I need my arms to help pull me along. You have unexplained, persistent, and relapsing exhaustion when you are tired. I sat for 10 minutes in hopes it would pass. I have since realized to pace my day with breaks. When I feel fatigued, I take it as a sign that I need to step back and take a break.. Its exhausting trying to explain the level of fatigue I feel to my loved ones. There is no way to convey how fatigue hits you unless you have MS. It may surprise you that the very medications you are taking for your MS symptoms may be contributing to your fatigue. Higher totals indicate more fatigue. Fatigue in MS is not just an ordinary tiredness, like you might get at the end of a hard day's work. It is important to use the principle of energy conservation. Many of these items may be obtained through MSAAs Equipment Distribution Program . Always consult your doctor about your medical conditions. Overall, people with MS need a balanced, low-fat and high-fiber diet. I constantly have this sensation that my neurological system is running at high-idle inside me, even while not in motion, which I think leads to the frequent and rapid fatigue all day, every day, even if I do make sure to get plenty of sleep. Taking DMTs in the long term may also slow the conversion of relapsing-remitting MS to secondary-progressive MS, a form of MS that causes symptoms to worsen steadily. Regular fatigue is not getting enough sleep, and feeling tired during the day. Finally, what's really helped is articles and blogs like yours where we can help each other--and our friends and loved ones--understand, connect, and feel we're not alone.
I couldnt agree more on everything you said! But having good sleep habits, avoiding caffeine and too much alcohol, and getting some daily exercise are good ways to prevent MS fatigue, says Dr. McCoyd. Life isn't perfect or always easy, but this is the life I was handed and I try to make the most of it despite my handicaps. Like almost everything else about MS, the symptoms and severity of fatigue vary from person to person. He jumped up and advised I go to bed ASAP. Finding those that understand is sometimes the most comforting thing. I let them know that I will need a day to recover, but it's worth spending the energy on what I love. Its better for you. Best wishes, Calie
,I have to tell everyone that all of you actually get it. That was last year. I had kids very young and did alot of walking when they were babies, to walking and riding bikes, skating, swimming and teaching them how to play basketball and softball and always practicing with them. Hypertension: Can 15 minutes of yoga a day help control blood pressure? The many people that do not have MS tend to say oh me too I didn't sleep well, etcI just want to give them MS for one hour so they can feel what its truly like to have MS fatigue. Heres what it feels like to live with , and the symptoms that make it more than just feeling tired. But things that need to be done (laundry, dishes, etc), I just do the best I can.
, I .must admit that I thought I was dealing with my fatigue
ok managing to getting through basic tasks as well making visits too the opticians and the dentist to arrange treatment then I broke my hip and everything went haywire. As I said, you can't for a second understand what it's like falling off of a mountain, unless you have fallen off of that mountain yourself. Theres a FaceBook page I recently found titled The MS Gym geared to people with MS that is very helpful. I am blessed to have a wonderful husband, but I know he cant fully understand. Dysthymia is a type of chronic low-grade depression. MS fatigue is often overwhelming. Right now my house needs vacuumed and dusted, but I wanted to water outside today so it waits. What happened?" I feel like saying "I've had MS for 10years now, I am sure you can figure it out by now why I feel the way I do" and sometimes I lie. I pray a lot to the Buddha. On most days, its like climbing up a steep hill carrying a baby elephant.
It has caused me to be a better planner of my day.
I feel like people are getting sick of feeling helpless and Im trying not to be a burden. Absolutely no one gets it. I spoke to him about it the summer before he died from it in October. The U.S. Food and Drug Administration has approved several DMTs for use. I want to add to Calie's quicksand analogy. The average age of onset is 33. Quite honestly now I just say it's the MS and leave it at that. The National MS Society states that lassitude is a type of fatigue unique to people with MS. Non-pharmaceutical methods of addressing insomnia can also help with depression. Most people start to feel better after treatment finishes. Good luck Bill
Great article, Calie! do you have a special planner that you us?
Now, I know it is something we all experience. Knowing the signs helps me to back off a bit before I fall.
You got it "Oh I feel like Ive been hit by a dump truck, have the worst hangover of my life, and have the flu. It can significantly interfere with a person's. Another way that chronic stress makes us feel exhausted is by interfering with sleep, says Bufka. Wellbutrin is a NDRI antidepressant , and is one of the most energizing and most effective of the non-SSRI antidepressants against fatigue. It takes more energy to send and deliver messages to other parts of the body, like the muscles in your arms and legs, causing a build-up of fatigue. Or, it can be a strange numbing sensation, like my leg is about to crack open. (I have more of a focus issue.) Lets hop in the car and just gowell buy what we need for the weekend where ever we decide to stopoh wait, I cant. I liken it to walking about underwater in one of those old fashioned diving suits you see in movies, with the big brass helmets and clumpy lead boots. Your doctor might use the plural, entheses. oxybutynin (Ditropan), darifenacin (Enablex), or prazosin (Minipress) for, Modified Fatigue Impact Scale (MFIS). The exact cause of MS-related fatigue is still unknown. When some muscles cannot perform certain tasks other muscles are used instead and the extra work can tire those muscles, leading to additional fatigue. Sexual dysfunction is common in MS. I will never try to explain what MS is like to someone who doesn't have this disease, it's a waste of precious breath.
,I don't have unrelenting fatigue like other MSer's but I do have a limit on my energy. Going to bed at a normal time was rough, I have always been a night "No" has been super hard for me but I'm getting better at realizing that I can't do it all, and its okay for " me to take care of me" as my neurologist told me. MS fatigue can be physical and mental it saps energy in an instant and can stop you from completing tasks. Dont Miss: Can Cancer Cause Extreme Fatigue, Symptoms: Fatigue from an activity that should be easy.
I often sit on a scooter or in a chair thinking about how easy it should be to stand, walk across a few feet and pick up the tyrash can to empty. Members describe disappointment and resentment from loved ones who do not understand how severe and unrelenting their fatigue from multiple sclerosis can be. But I rest and I say to myself that I can continue why shouldnt I.
So glad to connect with other MS people. Youre a better man, then I! Members of MyMSTeam describe chronic, profound fatigue that does not usually improve with a nap or a cup of coffee. What does an MS exacerbation feel like? each. To you, those experiences are just stories. Janus
,Hi CindyLou,
They don't really want to know, it's something too many people are programmed to say because they think it's the "right thing" at the time. Nearly 2.5 million Americans may have the condition. What does MS tingling feel like? MS is a different tired in my case. Some people say they experience MS fatigue after gentle activities such as writing or reading and they immediately need to rest. Then a simple dizzy step or sudden black out of the lights and I am down on the floor or ground. By doing that, you're helping others that are going through similar situations to know THEY aren't alone either.
Limiting the number of medicines is good medical practice. Thankfully, my furbaby doesn't care! What does MS fatigue feel like? Dont Miss: Plus Size Army Fatigue Joggers. You are so full of energy these days!" It is so hard to explain. You might feel like fatigue is a constant reminder of your cancer and this can be hard to accept. I say only MSers really knows this fatigue. Your doctor can help you sift through your health issues, as well as diet, exercise, and other lifestyle habits, in order to zero in on the cause and help you on the road to recovery. As a result, a doctor may prescribe medication to treat specific symptoms. I'm one more who can relate.
All I can think of to say is, "WOW"not good, not bad, just WOW. The heaviness consumed her., Fatigue has been my biggest demon since being diagnosed in 2004. The older I get the more tired I feel. Symptoms; MS fatigue scale; Complications; Causes; Treatment and management; Outlook; Summary; Fatigue is one of the most common and disabling symptoms of multiple sclerosis. Then I hit traffic, AND it started to snow. What does MS feel like in legs? What are the early signs of multiple sclerosis (MS)? And a wife that I feel guilty as hell when it gets so hard to do the things I used to do to help. Especially after all of those hours of work, the Lemtrada, the day to day activities BESIDES having the m.s. My husband keeps saying "you don't owe anyone an explanation if you feel like you can't do it just say you can't do it end of of discussion "
,My fatigue is hard to explain as well. You feel like you're in a daze. Although I know that there is no solution (yet ), but it's nice to know that I am not alone.
,I hate that you also can relate to this, but Im thankful to have others who truly get it! I could go on. Then I hit traffic, AND it started to snow. I changed my work lifestyle, went from working midnight shift as a RN to days, quit my second job thinking I was getting older and just needed to be on a more normal schedule. !
,Just fixed
Best Wishes, Calie
I use the word "lassitude,"
Calie, I to have fatigue/tiredness. They are probably all associated with your ON, visual disruption causing your 'where i am in space' (sorry cant find the noun) to be wonky, which = Vertigo. MS fatigue can be acute, lasting up to 1 month, or it can be chronic, lasting 1-6 months or longer. On those days when I have to or choose to go out, I do so knowing that I will be horizontal for the rest of the day and maybe the next. Im glad to know the reason why Im always so tired/sleepy knowing I slept pretty long.
bladder problems 4.4 Early Signs of MS You Shouldn't Ignore Author: health.clevelandclinic.org Post date: 7 yesterday Rating: 3 (310 reviews) Highest rating: 3 Low rated: 3 Summary: Every step I take is like that. Thats what is so great about this online community. You may have more symptoms if you have untreated Addison's disease or damaged adrenal glands due to severe stress, such as from a car accident or an infection. And so for many of us, even though we might think were sleeping the same number of hours, its not the same quality. If fatigue is affecting your quality of life, its time to talk to your doctor. Insufficient sleep, which can be related to other MS symptoms like bladder urgency, muscle spasms, or pain. The legs won't untangle, the knees will not bend, if I manage to eventually roll into a position sitting on both ankle I still can't recover because telling my leg muscles to push up and straighten is inpossible. I have a hard time asking for help because I look good. Please keep us posted Janus
Thank you for this article. Some think that fatigue may be related to the constant activation of the immune system, sort of like having the flu virus at all times. Also, I Limit doing difficult days to plan an easy day in-between.
,That sounds like a smart approach, @stuckey17. However you have to make sure you take it in the morning or you may be awake all night.
,I haven't experienced any side effects and I've been taking it for 7 years!
,My fatigue is always there waiting for me to overdue. Passive cooling garments, such as a vest and wraps for the neck, wrists, or ankles, use ice or gel packs to give people with MS immediate and simple relief from heat and certain MS symptoms.
MS patients may also become fatigued by the presence of sleep disorders or from certain types of medications. Complications of MS that may also cause fatigue symptoms include: Fatigue can also be a side effect of certain medications, such as those used to treat spasticity, pain, and bladder dysfunction. God bless!
Well written article about MS fatigue. But from what I read on here, every time I logged on, someone is saying that they find it so difficult to "explain" their fatigue, pain, etc People DO try to explain, no getting around it. I almost feel it is unfair to expect others to fully understand fatigue. In all, it's not always a disease people can see, so it gets minimized. However, seems to get me to about 3 pm then Im dead again! Fatigue may be the most prominent symptom in a person who otherwise has minimal activity limitations. It is important to treat MS early. When I say Im tired
I can have everything I need to do something productive, but as long as that lead ball is in my lap I can't do anything. No single test can confirm a diagnosis of psoriatic arthritis.
Maybe just some advice on what steps I can take to carry on with my life. Just let me be. Others theorize that fatigue is related to the need for the brain to work harder in people with MS. MRI scans have shown that people with MS fatigue use a larger area of the brain to perform tasks than people without fatigue. Not a complete answer but helps immensely.
The MFIS is also available in a shorter 5-item version. I don't have the energy" before they get it?
In more severe cases of COVID-19, Khabbaza says patients often have more serious delirium that accompanies their fatigue. Cancer treatment shows promise against multiple sclerosis in mouse study, Alzheimer's: Blood test may detect 'toxic' protein years before symptoms emerge, Low levels of vitamin D in the brain linked to increased dementia risk, What to know about late onset multiple sclerosis. I used to be uber fit worked 60 hours a week easy. You come back here anytime you want to, as much as you want to! There are non-medical treatments for fatigue related to MS: In general, if possible, it is good to avoid using medications. Im glad to know the reason why Im always so tired/sleepy knowing I slept pretty long. This is my 1st time seeking out some understanding as I've only been aware of the diagnosis 1.5 years. To cope over the years, first I've had to accept that it is disabling, not just laziness or not trying hard enough.
I keep telling myself that he doesnt understand because he saw the athlete that competed in marathons, hiked 9 miles not to long ago, not to mention an avid hunter but cant even hold my rifle anymore. One thing that totally frustrates me is when well meaning friends or family keep asking me if I want to do something during this time, and they don't let it go. Best wishes, Calie
For me I just stop fighting it if I'm in the middle of doing something I will stop take a break. Its frustrating and I always second guess myself with am I just being lazy. How can I know for sure? Again, its like the quicksand. Thank you so much for reading and commenting! Calie, I appreciated your vulnerability. People with MS may have a condition called restless leg syndrome, where they feel that they have to move their legs to get relief. The early signs and symptoms of MS can vary widely, and some can be significantly challenging. It's described as a feeling of exhaustion that's out of all proportion. But five weeks is quite depressing. It does help to know we arent alone.
,
This article really saved and helped me!! Most days it feels like staring at the sun or walking out into bright daylight, except this happens while indoors. One theory is that fatigue is related to the general activation of the immune system. I had a baby in October and am not on ANY medication because I'm breastfeeding, but I started paying attention to what I say and what I focus on because my body really listens to what story I'm telling myself and others!! Score: 4.7/5 (29 votes) . I should have stopped and rested but I wanted to do one more thing For me, fatigue affects my ability to think straight as well as being tired. Every time I go through these episodes of severe fatigue I long for the moment it will end, so I can go back to my sort of normal.
If you have any other questions or concerns please know that you are welcome here anytime!
Oh yes, Im there with you on everything you wrote so eloquentlyOk gotta take a nap now zzzzzzz
,Thinking of you
Coming to a Cleveland Clinic location?Cole Eye entrance closingVisitation, mask requirements and COVID-19 information. It is also important in reducing costs. Certain diets have been studied to evaluate their impact on MS-related fatigue, and its important for people with MS to talk about dietary choices with their neurologists to ensure that they arent eating foods that worsen fatigue.
The only thing that helped was listening to my body. Ill crawl at times, sit on the floor, then I can get up and take a few more steps. the gait can also become ataxic when the lesions are present in the cerebellum of the brain.
The commands fail to reach the muscles. I was believing them. - Lori (Team Member)
Calie, I feel you. Although no one knows how CFS/ME develops, researchers agree on a few facts. Its horrible to hear Im tired too. I get it. The more tired i am the worse my spelling and comprehension gets its like my brain switches off. It's real and you have to respect it. Anxiety.
None of those people have any experience with MS, but since they have heard about how someone deals with it, I MUST BE WRONG! MS fatigue can be physical and mental; it saps energy in an instant and can stop you from completing tasks. For me, showering or bathing hot always makes me a little sleepy, but that has nothing to do with the fatigue. MS fatigue is more than just a feeling of being tired. I've been trying to explain/understand/describe/live with this feeling since I was diagnosed in 1993! I am going to the Dr this week and i will be mentioning MS
Often, this occurs with walking. In our book Living with Fatigue, people with MS describe their own experiences. Compounded by frustration and embarrassment.
So true about how we look to others. Its exhasting, in every sense of the way, and just knowing that someone else "gets it" helps me get through it! Also Check: Anti Fatigue Mat For Corner Sink.
Thank you so much for reading and sharing with us. But, I try not to put myself into situations where I get fatigued, because it can be dangerous because I cant think straight and get anxious. If you would like to change your settings or withdraw consent at any time, the link to do so is in our privacy policy accessible from our home page. But, why? I am now 53 and I have to say you've explained fatigue better than I ever could. In some people it may take a lot longer. I was diagnosed In 2003, so 16 years ago How do you know if you have progressed to SPMS? 8 yrs later I still go once and week and miss it if I don't.
This information is not designed to replace a physicians independent judgment about the appropriateness or risks of a procedure for a given patient. on the fatique scale. Advertising on our site helps support our mission. Occasionally, its close to that sweet spot between being drunk and hungover, except no cocktail happy hour preceded it. Thinking of you and sending lots of healing thoughts your way. The effort to manage the pain while doing the basic thing like washing and dressing is a killer. My extremities feel as if they are made of lead and my head feels all fuzzy. I get the raised eyebrows a lot for my time consuming fumbling around for something simple, then dropping it at registers. Or when I get home I need to sit in car for 30 min because I cannot make it in the house its not just tired it is an all consuming fatigue And its not funny its frustrating to hear it 8 pm past your bedtime hahaha
The most antidepressants belong to the class called selective serotonin reuptake inhibitors , and insomniacs who start taking one of those drugs often find relief for their sleeping problems. I get Im tired toobut for me its Like when I get into my car after work I cant start driving to go home
Until it is experienced it can be hard to understand the impact of fatigue and how debilitating it can be. My whole life (73) went leaning on others to solve problem. Even my eyes. Fatigue is the most common symptom of multiple sclerosis (MS). And I cant find any way to recharge them, and there are no charged batteries to be found. My man now just says "tell me if you're NOT wipedthat'll be a nice surprise."
quicksand is a good description because you need to plan and be aware of pacing your body. It's been 2 months since i frist experienced the heaviness in my legs- EXXTREME HEAVINES. Others suggest that the way the body adapts to MS damage, and the increased effort required, could also play a role in fatigue. I gotta go pack my meds and grab incontinence supplies. Phone conversations and FaceTiming can be draining!!
I'm confused of fatigue vs feeling sleepy and unable to sleep. A few ways to best utilize your energy include: Many patients experience pain all over their body. Walking Difficulty. So I dont want to argue. In general, if possible, it is good to avoid using medications. Consider Telecommuting.A great way to conserve energy is to reduce the amount of time spent traveling to and from work. 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